Category Archives: Stories

My son died in 1994 but his heart only stopped beating this year

Article by Harry Low – BBC

May 2017

Link to the complete article: http://www.bbc.com/news/magazine-39422660 

Link to the Facebook post: https://www.facebook.com/bbcnews/posts/10154643441412217

Link to BBC Mundo – Spanish: http://www.bbc.com/mundo/noticias-39815787

Link to BBC Brazil – Portuguese: http://www.bbc.com/portuguese/geral-39818220

 

 

 

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His Heart Saved the Life of His Baseball Idol

When baseball legend Rod Carew visited Konrad Reuland’s middle school to watch a basketball game, the teenager could talk of nothing else to his family that night. Fifteen years later Konrad’s heart saved Rod’s life.

By then Konrad had become a public figure too, an NFL tight end — he had played for the New York Jets and the Baltimore Ravens — and by all accounts was in the best shape of his life. But, like so many other healthy people, he was hit without warning by an aneurysm in December when he was 29 and, despite a 17-hour operation, became brain dead. His parents donated his organs, saving the lives of some very sick people, all unknown to them.

One, it turned out, was Rod Carew, who had developed heart failure after a massive heart attack in 2015, and it was Konrad’s mother, Mary, who figured it out after friends wondered aloud if he could have been Carew’s donor.

All she knew was that the heart came from a 29-year old who lived in Southern California but it was enough for her to ask question after question until she found out what she could scarcely believe: that part of her son was keeping alive a man he had idolized. Carew, now 71, was an icon to millions: the Hall of Fame Minneapolis Twins first baseman who was a seven-time American League batting champion and who stole more bases in one season than anyone in history except Ty Cobb.

At the time of Konrad’s death, however, he was a man struggling to stay alive, the only possible cure being a donated heart. Given the severity of his condition, the need for the new heart to be compatible with his own and the chronic scarcity of families willing to donate the heart of a loved one who has just died, the chances were dauntingly small.

But there is always a trickle of families like the Reulands and Rod has recovered strongly in both body and spirits. I met him at one of the press conferences that in recent days the two families have held jointly to promote good heart health and draw attention to the power of every organ donation to transform the world for multiple people.  Asked whether having a heart that belonged to someone else gave him any physical problems he said simply, “No. I never think about it.”

At this press conference, held appropriately at the Little League stadium in Encino, California, I asked the two sides if meeting each other was beneficial. Neither hesitated. “Absolutely,” said Mary and Rhonda, Rod’s wife, added, “We feel we have known each other all our lives.” The Carews are profoundly grateful to the Reulands and the Reulands are comforted that Konrad’s decision to say ‘yes’ to organ donation, when he renewed his driver’s license a few months earlier, has saved the life of such a revered man.

More broadly, just as donating an organ gives solace to almost everyone who does it, Mary commented, “Knowing a piece of my baby is still down here on earth is a great comfort.” I had to fight back the tears. To call a 6-foot-6, 270-pound football player a baby in public takes boundless love and almost unbearable pain.

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“I’m Going to Get a New Heart from the Hospital,” Six-Year Old Tells His Family

A week after his sixth birthday Aiden Hansen was on a walk with his father, Jesse, mother, Shifra,  and little sister, Lilah, near his home in Santa Rosa, California, when a call came in telling them his new heart had arrived at Stanford Hospital and they had to leave immediately. They had been waiting for a year and a half. 

His great grandfather, Arthur Hansen, wrote to Maggie and me about it. With great care and for no pay, Arthur looks after the peaceful country graveyard in nearby Bodega where our seven-year old Nicholas is buried. This gentle, warm-hearted man has always seemed to share our grief and it was easy to see how much this moment meant to him.

                “Aiden asked his dad if he could phone Mimi, his grandmother, our daughter,” Arthur wrote. “Jesse dialed the number and gave Aiden the phone. When she answered the words tumbled out of him. ‘Mimi, my heart came in and I’m going down to get it.’ He was so excited even knowing the challenges of surgery, having had three open-heart operations already.”

                That night, as he waited to go into the operating room, he asked Mimi how late it was. “It’s 1:30,” she told him. “That’s the latest I’ve ever stayed up,” he said. His mother was nursing Lilah and couldn’t be there. “Is there anything you want to tell mommy?” Jesse asked as he took a video. “I love you,” he replied.

Aiden - Family photo

Three days later Aiden was dead, the operation being too much for his weakened little body to withstand.

Death has a necessary purpose, we know, replacing the old and infirm with the young and fresh. But death, in its clumsy way, all too often gathers up spring flowers also. And sometimes those flowers are the most beautiful of all.

“I have been in tears writing this letter to you,” Arthur wrote. And so was I.

Aiden’s parents have paid a loving tribute to him at www.aidenhansen.com.

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After a Heart Transplant, She Climbs Some of the World’s Toughest Mountains

Here is a photo of Kelly Perkins, who came from England to Southern California and has climbed some of the world’s most famous mountains with her husband, Craig, including the Matterhorn, Fuji and the awesome (what other word fits?) El Capitan in Yosemite.

craig and kelly

All that, after having had a heart transplant in 1995, making it impossible for anyone who hears about these exhausting climbs to doubt that having a transplant can restore a terminally-ill patient to the peak of fitness. Good going, K.

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Children, Once Too Ill to Walk Across a Room, Take to the Ski Slopes

High in the Swiss Alps, in the little town of Anzere, 34 children from around the world, aged 6 to 17, were preparing to ski down a 45 degree slope in a revered competition that at one time none of them could have dreamed of being in.

It was a perfect day for the climax of the World Winter Transplant Games: the Nicholas Cup.

The weather was calm and clear, the sun dazzling on the pure white snow. The course was treacherous, however, hard ice in places, difficult to dig in the edges of the skis to cut the angles round the gates and more difficult than for the usual run of skiers because, a week earlier, none of these children had ever been on skis. Until then, some – such as those from Tunisia, Hong Kong and Israel – had never seen snow. “I falled over a few times at first,” one small face said proudly. “But I’m alright now.”

Nicholas Cup, Anzere, March 2012

Day 1: First hesitant steps.

But the real challenge was of an order of magnitude greater than all that. All of  them had once been so ill that their only cure was an organ transplant: a new heart or liver, kidneys or lungs to replace the ones that were dying inside them.

Some had been desperately sick at birth – yellow or blue or a lurid shade of green. One had kidneys the size of peas. A third had to be fed through a tube and, says his mother, “for the first two years he never laughed.” Some could not walk across a room without stopping for breath. Others had lived normal lives, until felled by a virus that at first seemed no more severe than a headache. The first that one father knew of a problem was a scream in the night as one of his daughters heard her younger sister collapse on the floor and then kept her alive for forty minutes as the ambulance crew talked him through the CPR procedure.

For many of these children any form of exercise, let alone a competition mixing risk with athletic agility, was physically impossible. On top of that the years of  dependence could have eaten away fatally at their self-confidence. Yet, on the day of the race, one by one the little figures appeared at the starting gate, high on the mountainside. Some came down with what the commentator charitably called “a racing snowplow” style and one or two held on to the instructors. But most tackled the course with assurance and a few with insouciance.

March 8-9 Nicholas Cup 2012

Day 7: “What’s the problem?”

The triumph, however, was collective: these are not sickly lives prolonged by an experimental medical procedure but children who, if anything, perform better than other kids because they exercise and eat more healthily and, having learned at close quarters how precious life is, are determined to make the most of it.

The competition was started by a liver recipient, Liz Schick, a British-born mother of two living in Switzerland who, like so many recipients, wanted to say ‘thank you’ to the world and has done it in an unforgettable way. As one 15-year old girl, who had a transplant when she was 2, and has been shunted between homes to wherever the appropriate medical treatment could be obtained, said afterward to her mother, “This was the best thing I ever did.”

From Reg Green’s book “87 And Still Wandering About.” 2016. www.authorhouse.com.

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Organ Donation Leaps Over the World’s Biggest Barrier

I have just spent a week in the company of a man whose experiences throw a fresh light on the Israeli-Palestine conflict. He is Ismael Khatib, the 46-year-old father of Ahmed, a 10- year old boy who was shot six years ago, in the tense West bank city of Jenin, by an Israeli soldier who, on a day of rioting, saw him among a group of other boys holding what looked like an automatic rifle. It turned out to be a plastic model.

Ahmed was taken to the Rambam hospital in Haifi where he was declared brain dead. The doctors then did what their counterparts in hospitals all over the world now do routinely. They asked Ismael and his wife, Abla, if they would donate their son’s organs to whoever was at the top of the waiting list, which is compiled regardless of race or religion. The Khatibs consulted their religious leaders — who signaled their agreement – and their donation leapt what is probably the most bitterly-divisive barrier in the world, Ahmed’s organs going to six Israelis, all of them small children, four of them Jews. I met Ismael when we were together on a tour of Eastern Canada which included talks with Muslim, Jewish and Christian communities. It was arranged by George Marcello of Toronto, who has had two liver transplants and has walked across Canada carrying a torch – subsequently blessed by Pope John Paul II — to tell everyone who will listen that tens of thousands of people around the world die every year because of the shortage of donated organs. George, lion-hearted in determination and achievement, is one of those remarkable recipients who cannot rest until they have paid back everything they can think of to a world that has shown them such unexpected selflessness.

In the hate-filled atmosphere of the Palestinian question, where every action is weighed by the committed on both sides to see what propaganda can be wrested from it, the implications of saying ‘yes’ to organ donation are profoundly ambivalent. Some Palestinians are embittered about Ahmed’s organs going to Jews. Many others are using the donation quite cynically as a way of claiming a moral ascendancy over their enemies and advancing their cause in its wake. Given the intensity of the conflict, everyone involved can be presumed to have mixed emotions.

But what is perfectly clear is that to take the organs of a dead person, put them in the bodies of several others who are dying and out of that produce a crop of healthy lives is a triumph for humanity.

The Torch of Life

Yael Gladstone, seen here at Niagara Falls, is the sister of Yoni Jesner, a Jewish pre-medical student from Glasgow who was killed when a Palestinian suicide bomber blew up the bus he was traveling on when visiting Tel Aviv. Next to her is Khaled Khatib from the Palestinian town of Jenin, whose ten-year old brother, Ahmed, was shot by an Israeli soldier who thought the plastic replica of an assault gun he was holding was real. Both families donated their son’s organs. One of Yoni’s kidneys went to a seven-year old  Palestinian girl. Six of Ahmed’s organs went to young Israeli children, four of them Jews. Yael and Khaled are holding the Torch of Life that George Marcello, a Canadian who has had two liver transplants, has single-handedly made an international symbol of the power of organ donation to bridge even the world’s most bitter divisions. He has walked across Canada carrying it, showing it in hundreds of towns and villages, and took it to Rome, where Pope John Paul II blessed it.

 

We can hope too that transplantation, with its ability to scrupulously avoid discrimination, will also be a stepping stone in bringing the whole world a little closer together. Since meeting Ismael I often think of Yoni Jesner, a 19-year-old Scottish Jew, who was killed by a suicide bomber in Tel Aviv in 2002 and one of whose kidneys went to a seven-year-old Palestinian girl.

The closing event on our tour added one more dimension, a talk to the  governing council of an aboriginal community, the kind of society that from time immemorial has believed that tampering with the body is taboo. Now, it turns out, almost all of them have signed donor cards. For them also a medical miracle has modified the beliefs of all those accumulated generations and life has trumped death.

(From “87 And Still Wandering About” )

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Lung Recipient Runs Up A Skyscraper

“I was sick all my life,” says Steve Ferkau, manager of trading floor operations at the Chicago Stock Exchange. “As a child I was always coughing and getting serious infections. I had bronchitis, allergies and bouts of pneumonia. I was very thin, and as far back as I can remember I was always the smallest in the class. At 16, when I got my driver’s license, I weighed 75 pounds.”

            On his 13th birthday, his problems were diagnosed as cystic fibrosis, the genetic disease that produces thick sticky mucus that clogs the lungs. Thirty thousand Americans suffer from it.

            The treatment was a form of torture for everyone involved.  Every day someone had to pound on his chest so he could cough up the gooey mess to clear his lungs. “Mom had no rhythm, so at 7 o’clock, nearly every morning for six years, Dad cupped his hands and thumped my chest until he left for work. At 10 o’clock at night he did another half hour.”

In time he deteriorated so much that he was put on the transplant waiting list. For three years, he was on oxygen 24 hours a day. Just to get up off the sofa, where he spent a lot of time, and walk to the bathroom left him crouched over the sink struggling to catch his breath.

Then one day, out of the blue, when his lungs were so clogged no one knew how he could pull air into them, a pair of lungs were offered to him. “As with most successful lung transplants he was pink immediately,” his nurse recalls. Three weeks after the operation, he walked a mile in 20 minutes, something that before the transplant could have taken hours. In ten weeks he was back at work.

            The one thing that clouds the result for him was that the lungs came from

a beautiful, intelligent and athletic 17-year old from Iowa, Kari Westberg, who woke up one day with a headache and died of a brain hemorrhage later that day.

Steve struggles to find some ground where he can tell Kari’s parents how happy he is without reminding them of what they’ve lost. But what he wrote to them must come as near to that hallowed ground as any poet could find: “You’ve taught me there is pure goodness in the world.”

Kari’s mother, Lisa, responded in her own unaffected way in talking about Steve and Kari’s heart recipient. “We never want them to feel they owe us,” she says. “Their happiness is gratification enough.”

This was not enough for him, however. Three years after the transplant in an event staged by the American Lung Association of Metropolitan Chicago, and dedicated to Kari, he raced up 94 floors of the Hancock Center – 1,632 steps — in 33 minutes.

And he has done the same thing in her honor every year since then, a total of 14 times.

From “The Gift that Heals,” by Reg Green, published by AuthorHouse, 2007, (www.authorhouse.com).

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Blind for 48 Years, He Can See Again

On the day after Christmas 1944, in a corner of what became one of the most fiercely fought battles of World War II, a German mine blew up in Sergeant Harold Urick’s face. It left him totally blind and he stayed that way for 48 years.

            Harold’s unit, the 303rd Engineers, had just crossed the redoubtable German defensive barrier, the Siegfried Line, when they were ordered to dig up and defuse mines.

            He remembers every detail. “It was a bitterly cold day and the ground was frozen hard. There was a man on each side of me as we moved forward. I saw the mine – it was one of the small ones they used, just about a quarter pound —  and began digging it up very carefully with my bayonet. Suddenly I slipped on the icy ground.  There was an explosion and everything went dark. I put my hands on my face. ‘My God, I thought, what am I going to do now?’

            “Most of all in those early days, I worried about Jean. I was 21 and we’d been married just over a year. I thought of it over and over. Instead of the life we’d dreamed of when the war was over, I was going to be a burden to her all her life.”

            He was flown to a military hospital in Valley Forge and then back home to Cleveland. One eye was so badly damaged that it to be taken out and a prosthetic one put in its place. With the other he could see just a patch of light.

            He spent two years in a therapy school and then, with the dogged courage that has defined his life, started a physical therapy business of his own. “But people weren’t as affluent then and it didn’t take,” he says. He worked for several years at the Cleveland Clinic and then for another 15 at a snack bar managed by the Cleveland Sight Center.

            In the meantime, he and Jean had five children and seven grandchildren, none of whom he had ever seen. The family was central to his life. He went to almost every high school and college football game his son, Jeff, played in. “My wife would tell me what was going on. I just wanted to be there.”

            But his sight didn’t improve. “I went to three or four ophthalmologists over the years but all of them said they couldn’t do anything for me. Then one day in 1992 I was listening to a television program and I heard a doctor talking about transplanting corneas. I didn’t know what to think but I went back to the eye doctors. They weren’t encouraging until one of them said, ‘I know a doctor who does these. I think you should go to him.’

            “That’s how I met Dr. Philip Shands at Kaiser Permanente. ‘Yes,’ he told me, ‘I do these. Do you want to try?’ ‘You bet,’ I said. ‘What do I have to lose?’”

            Shands had then been in practice for only a year or two and was unsure himself about how much he could help. “The prosthetic eye we could do nothing about, of course. But when I examined the other one, I could see a small bit of the iris which, when we shone a light on it, constricted a little. Then, using ultrasound and other tests, it appeared as though the retina and other structures inside the eye were intact.”

             With this encouragement, Harold was put on the waiting list and told it would probably take three or four months before they had a cornea for him. “You might think I’d be on pins and needles all that time but I wasn’t. Most of the time I didn’t think about it, probably because he exuded so much confidence,” he recalls.

            Just before Thanksgiving, he was called in and, with great care, Shands removed the badly damaged cornea and other scarred tissue, implanted an artificial lens to focus the light and sewed in the donated cornea. In about an hour it was all over, Harold remembers. “‘Are you done?’ I asked him. ‘Yep,’ he said ‘but you’ll have to wait until tomorrow morning when we remove the bandages.’

            “The next day, when he began to take them off, I was lying face down on the bed and the first thing I saw were his shoes – the first things I’d seen in 48 years – then his pants. I looked up and saw he was wearing glasses. It was still a bit fuzzy, but they’d warned me it would take a while.

            “Then I looked down the bed and there was Jean, looking as pretty as she did when I first met her. Then I looked at Yvonne, my oldest daughter. It was the first time I’d ever seen her face. And she was beautiful, too.”

            He had some shocks too, such as how big airplanes had become and how fast cars went. In a few months his sight had improved so that he could pass the driver’s test and read just about anything he wanted. “Since then we’ve only had to fine-tune the prescriptions for his glasses, just like any normal aging person,” Shands says. “With them on he has 20/25 vision. Like all corneal recipients, he takes small amounts of immune-suppressants but has never had a period of rejection.”

            The other patients Shands treats have much less dramatic stories. “This was a once-in-a-career case,” he says. “But vision is the faculty people fear losing most and, with success rates of over 90 percent for those who are legally blind, cornea transplants reopen a world they thought they had lost forever.”

            All his life Harold has treasured the little things. Now it’s being able to walk through a restaurant to find a table or waving at friends across the street. He can still see with only one eye but goes to baseball games regularly and doesn’t need a running commentary. And at 86, he still bowls and plays golf.

            “But best of all is being able to see the whole family,” he says. “That was the hardest thing all those years. Now I have everything I want.”

 From “The Gift that Heals,” by Reg Green, published by AuthorHouse, 2007, (www.authorhouse.com).

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Child Killed at Random Gives Sight to Others

Roxanna Green is the mother of Christina-Taylor Green, the 9-year-old girl who was killed when a gunman fired into the crowd at an outdoor meeting for Congresswoman Gabrielle Giffords in Tucson in 2011. She remembers, as in a nightmare, her daughter covered with a sheet and she, beside her, kissing her face and stroking her feet, willing her to live.

But, even as she and her husband, John, grappled with the enormity of their loss, they found the strength to donate her corneas, restoring the sight of two people, for whom there was no other cure. The child, born on one day of indiscriminate killing, September 11, 2001 – ‘9/11’ – and dying on another, gave the nation a reason to believe that, even in the most heart-wrenching circumstances, selflessness can overcome senselessness.

Christina Taylor Green with Roxanna

Shot at random: Christina-Taylor Green with her mother, Roxanna.

(Courtesy: the Green family)

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The Seven-Year Old Policeman

Six-year old Noah Michael Davis of Shawnee, Kansas. wanted to be a policeman so he could make sure “everyone was safe.” He didn’t make it. Instead, he drowned in the family swimming pool and was declared brain dead. Although he couldn’t help everyone, his family did donate his kidneys, giving two very sick people their lives back. On what would have been his seventh birthday, he was sworn in as an honorary police officer.

noah - the 7-year-old policeman

Noah Davis, Honorary Police Officer

(Courtesy: the Davis family)

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